Take a Survey

Are you a scleroderma patient, caregiver, or healthcare provider?

Adult patients, caregivers, and healthcare professionals in the United States and U.S. territories can share their lived experiences through short surveys. Your responses will help us develop free tools that improve self-advocacy, appointment preparation, communication, and care. Choose your survey.

Scleroderma patients

Adults 18 years of age and older with scleroderma in any stage, including patients with localized or systemic disease.

Scleroderma caregivers

Family members, friends, and others who assist people living with scleroderma by helping with daily care, medical appointments, advocacy, and emotional support.

Scleroderma professionals

Includes doctors, nurses, therapists, pharmacists, lab technicians, dentists, dietitians, fitness coaches, and anyone else involved in clinical care or diagnosis.